pulled-levered - shinnied-swung herself so fast up through the tree, arriving at the
boy's side while red streaks still enlivened a sky that was repainting itself purple. She
stood in the crook of limbs with him, and her delighted laughter rang down through the
cathedral oak. 1975 through 1978: Hare ran from Dragon, Snake fled from Horse, and '78
bounced to the beat, because disco ruled. The reborn Bee Gees dominated the airwaves.
John Travolta had the look. Rhodesian rebels, grasping the dangers inherent in any battle
between equals, had the manful courage to slaughter unarmed women missionaries and
schoolgirls. Spinks won the title from Ali, and Ali won it back from Spinks.
On the morning in August that Agnes came home from Dr. Joshua Nunn's office with the
results of tests and with a diagnosis of acute myeloblastic leukemia, she asked that
everyone pack up and caravan, not to deliver pies, but to visit an amusement park. She
wanted to ride the roller coaster, spin on the Tilt-A-Whirl, and mostly watch the
children laugh. She intended to store up the memory of Barty's laughter as he had stored
up the sight of her face in advance of the surgery to remove his eyes.
She didn't hide the diagnosis from the family, but she delayed telling them the
prognosis, which was bleak. Already, her bones were tender, packed full of mutated
immature white cells that hindered the production of normal white cells, red cells, and
platelets.
Barty, thirteen years old but listening to books at a postgraduate college level, had
no doubt studied leukemia while they were awaiting the test results, to prepare himself
to fully understand the diagnosis on first receiving it. He tried not to look stricken
when he heard acute myeloblastic, which was the worst form of the disease, but he
appeared more ghastly in his pretense than if he had revealed his understanding. Had his
eyes not been artificial, his stiff-upper-lip pose would have been utterly unconvincing.
Before they set out for the amusement park, Agnes pulled him aside, held him close, and
said, "Listen, kid of mine, I'm not giving up. Don't think I ever would. Let's have fun
today. This evening, you and I and Angel will convene a meeting of the North Pole Society
of Not Evil Adventurers"-the girl had become the third member years ago" and all truths
will be told and secrets known. "
"That silly thing," he said, with a half-sick note in his voice.
"Don't you say that. The society isn't silly, especially not now. It's us, it's what we
were and how we are, and I do so much love everything that's us."
In the park, rocketing along on the roller coaster, Barty had an experience, a reaction
to more than the canted turns and steep plunges. He grew excited in much the way that
Agnes had seen him excited when grasping a new and arcane mathematical theory. At the end
of the ride, he wanted to get back on immediately, and so they did. There are no long
waits for the blind at amusement parks: always to the head of the line. Agnes rode twice
again with him, and then Paul twice, and finally Angel accompanied him three times. This
roller-coaster obsession wasn't about thrills or even amusement. His exuberance gave way
to a thoughtful silence, especially after a seagull flew within inches of his face,
feathers thrumming, startling him, on the next-to-last rollick along the tracks.
Thereafter, the park held little interest for him, and all he would say was that he'd
thought of a new way to feel things-by which he meant all the ways things are-a fresh
angle of approach to that mystery.
After the amusement park, no hospital for the Pie Lady. With Wally near, she had a
doctor all her own, capable of giving her the anticancer drugs and transfusions that she
required. While radiation therapy is prescribed for acute lymphoblastic leukemia, it is
much less useful to treat myeloblastic cases, and in this instance, it wasn't deemed
helpful, which made treatment at home even easier.
In the first two weeks, when she wasn't on pie caravans, Agnes received guests in
numbers that taxed her. But there were so many people she wanted to see one last time.
She fought hard, giving the disease all the what-for that she could, and she held fast to
hope, but she received the visitors nonetheless, just in case.
Worse than the tenderness in the bones, the bleeding gums, the headaches, the ugly
bruises, worse than the anemia-related weariness and the spells of breathlessness, was
the suffering that her battle caused to those whom she loved. More frequently as the days
passed, they were unable to conceal their worry and their sorrow. She held their hands
when they trembled. She asked them to pray with her when they expressed anger that this
should happen to her-of all people, to her, and she wouldn't let them go until the anger
was gone. More than once, she pulled sweet Angel into her lap, stroked her hair, and
soothed her with talk of all the good times shared in better days. And always Barty,
watching over her in his blindness, aware that she would not be dying in all the places
where she was, but taking no consolation from the fact that she would continue to exist
in other worlds where he could never again be at her side.
As terrible as the situation was for Barty, Agnes knew that it was equally difficult
for Paul. She could only hold him in the night, and let herself be held. And more than
once, she told him, "If worse comes to worst, don't you go walking again."
"All right," he agreed, perhaps too easily.
"I mean it. You have a lot of responsibilities here. Barty. Pie Lady Services. People
who depend on you. Friends who love you. When you came on board with me, mister, you
bought into a whole lot more than you can walk away from."
"I promise, Aggie. But you're not going anywhere."
By the third week of October, she was bedridden.
By the first of November, they moved his mother's bed into the living room, so she
could be in the center of things, where always she had been, though they admitted no
guests now, only members of their family with its many names.
On the morning of November third, Barty asked Maria to inquire of Agnes what she would
like to have read to her. "Then when she answers you, just turn and leave the room. I'll
take it from there."
"Take what from there?" Maria asked.
"I have a little joke planned."
Books were stacked high on a nearby table, favorite novels and volumes of verse, all of
which Agnes had read before. With time so limited, she preferred the comfort of the
familiar to the possibility that new writers and new stories would fail to please. Paul
read to her often, as did Angel. Tom Vanadium sat with her, too, as did Celestina and
Grace.
This morning, as Barty stood to one side listening, his mother asked Maria for poems by
Emily Dickinson.
Maria, puzzled but cooperative, left the room as instructed, and Barty removed the
correct book from the stack on the table, without anyone's guidance. He sat in the
armchair at his mother's side and began to read:
"I never saw a Moor-never saw the Sea-Yet know I how the Heather looks-And what a
Billow be."
"
Pulling herself up in the bed, peering at him suspiciously, she said, "You've gone and
memorized old Emily."
"Just reading from the page," he assured her.
"I never spoke with God-Nor visited in Heaven-Yet certain am I of the spot-As if the
Checks were given."
"Barty?" she said wonderingly.
=176= |